Friday, July 22, 2005

 

Keeping Me Going…

What keeps me going these days is not something that you hear much about in the media or the annals of medical science. Yep, that’s right… it’s my love for the Lord and my ever growing relationship with Him through prayer. This is not some hokey, barely held together deal involving phrases like “born again” or “saved” though I can appreciate them from my protestant friends. It is not something picked up from some television evangelist nor read in some “tell-all” book about the end of time.

It is something simple that continues to grow within me… a love for Jesus Christ, His Father & the Holy Spirit and a thankfulness for all that He has done & continues to do for me and for that matter, all of mankind. It is very comforting to be laying there in extreme pain and know that there is someone one out there that truly understands what I am going through and all that I have done and still with all of that understanding & knowledge He loves and accepts me for who I truly am.

Sunday, July 17, 2005

 

Life is at Least Back to Normal....

Life is at least back to normal in the sense that the pain tells me that I am still here. I would sure like to trade with someone for a time just to get some sort of break for a while, this is getting real old, real quick.

I broke a tooth the other day... some would say OUCH, but not I. In fact just to qualify/quantify it I'll explain a little further. It was indeed a healthy tooth and it did in fact, have an exposed root / nerve. Yes, it hurt a lot. The pain of this new problem was absolutely nothing compared to my migraine!

I will never understand why people still refer to these darn things as mere headaches. They just aren't. And if you think these migraines are bad, try throwing a Cluster in on top of it all and you can't help but to wreath about out of your mind... or at least I am.

It is no wonder why folks bang their head against a wall with a Cluster, saying that the feeling of banging their head is better than the pain of the Cluster... I am a true believer.

Friday, July 15, 2005

 

Back From The Dead...

After days of feeling the ups and downs of being sick and being in the throughs of a really nasty migraine cycle at the same time, I am pretty healthy again... save for the fact I am now in another cycle.

It has been several days, in fact, weeks since I have posted here... I have healed, gotten a shot for my head and had a couple of days totally pain free only to wind up in the depths of another cycle. One this time I am thankful for not being sick with... that was truly awful.

Any way I am back, hopefully I am back for good. I still haven't quite gotten the hang of this blogging thing but hopefully I will soon along with an epiphany concerning its uses and things will be great in the world.

Time will tell... ;-)

Wednesday, July 06, 2005

 

The E.R. is such a lovely place this time of year...

On the evening of the 4th, while preparing to put my hurting self to bed, I had a terrible coughing fit. I just can't describe to you what that is like with a migraine... pure hell. Sometime within the middle of that coughing attack, I realized things were getting kinda fuzzy and I couldn't catch my breath. I immediately tried slowing the breathing down and grabbed a brown lunch bag outta the cupboard in case I really started to hyperventilate.

By this time the wife is following me around with a worried look on her face offering, what to her sound like reasonable suggestions . I was probably a little hard on her even though she was just trying to help, bless her heart. Things weren't really improving, even after using both my inhaler & some "epi" that I have stashed away for such an emergency. There is just nothing like that feeling of running out of air, especially if your head is about to explode any second.

I finally was able to catch my breath and stop coughing long enough to decide I needed to be seen by somebody and after a couple more spells, I decided it had to be that night. The wife had been through this drill before and beat me to her minivan. It was somewhere around 11 o'clock.

We arrived at the hospital and they got me right in to see the triage nurse. I explained everything to her including the fact that my pain management doctor had me on regular doses of methadone. Within minutes I had my own dark room complete with an emesis bag to throw up in and plenty of oxygen. Life was better.

Their electronic O2 meter said that I was a little low so they set me up on a nebulizer and scheduled an chest x-ray. Several times both the doc & the nurse came into the room asking questions about my migraine... all the while they were getting more short and acting suspecious about the pain. One of the comments was "with 40 milligrams of methadone in you, how could you possibly be in any pain." I wanted to smack each of them. Finally, I just told them to take care of the shortness of breath issues and I'd deal with the migraine when I saw the my doc, early the next day. They immediately got nicer and I was soon on my way to the x-ray department. I was still spuratically coughing & vomiting off & on.

When the x-rays arrived, the ER doc acted really surprised when he stated that I had pneumonia.... What an *** he was. Finally he gave me some antibiotics & some nasty cough syrup and sent me home. It was more of a relief to get outta there than it was to catch my breath...

Saturday, July 02, 2005

 

It's the Holiday Migraines

Just like usual, a big national holiday rolls up (July 4th) and sure enough... I find myself deeply entangled within the tentacles of a nasty migraine cycle and snared by an even more-vicious set of clusters. It's a real shame since the wife has until Wednesday off from work.

To top it all off I have somehow managed to come down with flu symptoms. What a lovely way to start out the weekend. Right now my head has let up somewhat (I sincerely hope it stays that way, I am totally exhausted). I thought that I'd take a few minutes to address some of my ongoing, open issues, like this blog for instance, and my hosting duties at Headaches dot About dot Com. Anyway, the post here this time will not set any world records for longevity or anything of the sort, that is for sure. I sure wish & pray that folks would be real nice and just leave me alone, sometimes when I'm feeling so out of it, it is so very frustrating. Other times, I am wondering where everybody is and why they aren't pestering me...

Friday, July 01, 2005

 

Woulda, Shoulda & Coulda

In all actuality, I woulda, shoulda & coulda posted something relevant on Tuesday, Wednesday and/or Thursday. The bottom line is I didn't. I was pretty disgusted with all that is transpiring lately between the various National and International head pain support organizations

Lately a few of these not-for-profit organizations that are involved in migraine awareness & education aren't playing very fairly. It is extremely sad to see representatives from each charity argue & put the other down instead of focusing on the goals, working together and moving the groups forward. It appears to be some sort of personality conflict and it may have existed for some time.

There is nothing wrong with a little bit of healthy competition when it comes to grants & donations, etc… However, when it starts to negatively affect the message that each organization is putting out, it needs to stop. I wonder just how many migrainuers were overlooked and not helped since the focus was on this conflict. I wonder how many pharmaceutical or other types of companies decided not to fund some huge research project because they noticed the childish behavior being exuded. I wonder how the overall cause of fighting migraine disease has been affected also...

This is no longer a call for public awareness & education. It is a cry for straightening it all out!

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